THE BLIND CALIFORNIAN
Quarterly Magazine of the CALIFORNIA COUNCIL OF THE BLIND
Summer, 2006, Volume 50, No. 3
Published in Braille, Large Print, Cassette, Diskette, Online, and Email
Jeff Thom, President
7414 Mooncrest Way
Sacramento, CA 95831
916-995-3967 cell
jsthom@comcast.net
Executive Office:
1510 J. Street
Suite 125
Sacramento, CA 95814
Phone: (916) 441-2100
Toll-Free in CA: (800) 221-6359
Fax (916) 441-2188
ccotb@ccbnet.org
www.ccbnet.org
Los Angeles Area Office:
Mitch Pomerantz
1115 Cordova Street
Pasadena, CA 91106
626-844-4388
mpomerantz@mailbox.lacity.org
Sacramento Area Office:
Dan Kysor
225 15th St.
West Sacramento, CA 95691
916-371-1514
Fax 916-371-7630
dan@ccbnet.org
Please send all address changes to the Executive Office in Hayward.
Editor: Mike Keithley
191 East El Camino Real #150
Mountain View, CA 94040
650-694-7771
mkeithley@pobox.com
Call the CALIFORNIA CONNECTION at 800-221-6359 for an update on legislation
and CCB events Monday through Friday after 4 p.m. and all day on weekends.
You may listen to either English or Spanish versions.
Members are requested and nonmembers are invited to pay a yearly
subscription fee of $10 toward the printing of THE BLIND CALIFORNIAN.
If you or a friend would like to remember the California Council of the
Blind in your Will, you can do so by employing the following language:
"I give, devise, and bequeath unto the California Council of the Blind, a
nonprofit charitable organization in California, the sum of $____ (or ____)
to be used for its worthy purposes on behalf of blind persons."
If your wishes are more complex, you may have your attorney communicate
with the Hayward office for other suggested forms. Thank you.
TABLE OF CONTENTS
Editor's Page by Mike Keithley
President's Page by Jeff Thom
Success Story: Don Katz by Cecile Betts
Spring 2006 Convention Report by Bonnie Rennie
Lemonaid on the Road to Recovery by Bill Tipton
Summary of 2006 Resolutions by Winifred Downing
In Memory of Bob Carter by Christopher Gray
Good Neighbor Fund Award by Winifred Downing
Membership Committee Report- Spring 2006 by Ardis Bazyn
CCB Board Teleconference Meeting by Rhonda King
2006 CCB Award Winners by Catherin Skivers
Publication Awards by Bernice Kandarian
Thank You by Kevin B. Duggan
On the Lighter Side by Evelyn Drewry
A Blueprint for Transportation Accessibility by Frank Welte
Career Connections: The Interview by Dr. Catherin Schmidt Wittaker
From the Capitol by Dan Kysor
A Letter to the Editor by Winifred Downing
Out of the Doghouse- Let's Train Us Some Dogs by Dan Kysor
Eye Research Exerpts by Dawn Wilcox
White Cane Story by Susan Kreiger
Bulletin Board by Keith Black
CCB Officers, Board of Directors and Publications Committees by Bernice Kandarian
In accepting material for THE BLIND CALIFORNIAN, priority will be given to
articles concerning the activities and policies of the California Council
of the Blind and to the experiences and concerns of blind persons.
Recommended length is under three pages; if space constraints make it
necessary to divide an article, every effort will be made to discuss the
matter with the author before publication.
Please send all address changes to the Executive Office in Hayward.
Editor's Page by Mike Keithley
I attended the spring convention. State conventions I attended, before
this one, had been disappointing to me due to my hearing impairment. This
one was different. I networked to find people to "look out for me" and
brought my wireless microphone, which helped greatly in many situations
such as committee meetings where the assistive receiver wasn't available.
I used the table as an acoustic reflector to focus voices.
Volunteers I encountered were very helpful and considerate, and I feel we
need to value their services. Someone always seemed to be nearby when I
needed assistance, and it was nice to spend a few minutes with them.
I used the braille copy of the convention program and, though well done, it
was blemished with missing dots. Someone put thought into describing the
hotel's floor plan, and, although I didn't begin to get used to where rooms
were until the convention had almost adjourned, I'm sure I'll have no
problems on my next hotel-visit.
I had a good real-world course in meat-cutting 101 (with what I believe to
be a dull knife) when I ordered a steak at the Harvard Street Grill; I sure
hope no one was looking! I even charged meals to my hotel room.
I was impressed with the orderliness of the Thursday night open Board
meeting (which I could hear through the assistive-listening receiver) and
Ann Kysor's handling of the Saturday evening banquet.
So now I'm home with new ideas for the BC. As mentioned in my last column,
your contributions make the BC come alive. Here are some suggestions:
Since we have many CCB members struggling to adjust to blindness, you might
consider sharing your story if you feel it will inspire others; they need
all the help they can get.
We also have young members looking for work. Not only is it important to
know how to write resumes and appreciate what is expected when applying for
work, real-world experiences help and inspire job-hunters. I remember my
job-hunting time. It was patient, pavement-pounding work and there was
that period of depression when I thought, "what's the use." I had an
attentive Rehab counselor and her support was appreciated.
You might have an issue you think CCB, as an organization, is not paying
attention to. Why not send a Letter to the Editor describing it and what
should be done?
I invite you to send contributions by email, print or braille. Email is
preferred, mkeithley@pobox.com. Give it a try.
The deadline for the fall BC is September 1.
President's Page by Jeff Thom
Because a substantial percentage of Blind Californian readers do not
regularly attend conventions, I considered using this spot for the printing
of the President's Report I gave at our Spring, 2006 Convention in
Sacramento. On due reflection, however, I elected to forego this option.
If you really want to listen to it, you can obtain convention tapes, which
are free for CCB members; or for Internet users, listen to the convention
archives on ccbnet.org. Second, and even more importantly, although that
speech, and this article, concern the future of CCB (and I will even refer
to my remarks a time or two), this article will have a different focus and
tenor.
I am writing this article on what, for me, is somewhat of a lazy, warm
Sunday. Yesterday, my family and many other CCB members joined perhaps 100
other folks, including many parents and their blind and visually impaired
children, at Guide Dogs for the Blind for food, tours of the school, and
just plain sharing. I was struck by two things relating to CCB, both of
them quite positive, although one didn't seem so when I initially thought
about it.
First, CCB members do a rather good job of participating in our
communities, and we need to continue these efforts. Networking, as this
participation is called, helps us be better advocates and inform others
about who we are. Even if we aren't able to recruit new members, which is
obviously a vitally important goal, teaching others about ourselves and
forming alliances that enhance the lives of blind and visually impaired
individuals helps fulfill CCB's mission.
The other item, as you will see, is markedly different.. Some members of a
CCB chapter came to me expressing some disagreement with actions I had
taken. My initial response, sadly all too human I suppose, was frustration
and resentment, but then I allowed reason to prevail and began working on
the process of resolving this situation.
When I sat down to write, on this lazy Sunday morning, a far deeper truth
occurred to me. The worst thing that can happen to an organization is
apathy. When people within an organization seek to change things from
within its structure, it indicates that the organization has the vitality
to grow and prosper in the future. Those of you who heard my Spring
convention report may remember that it focused upon the gravity of the
situation facing CCB in a decade or two if we don't do a better job
capturing members from our youth and senior populations, and for the need
to redouble our commitment to this organization. It was an address
designed to deliver a wake-up call. Better to listen to some gloom-and-
doom predictions if such a message can enhance our efforts to prevent those
predictions coming true.
A brief digression before I connect the dots, so to speak. I strongly
suspect that a few dozen readers may be wondering why I haven't mentioned
the end of my yesterday. That time has now come. The finale was a great
Capitol Chapter social event. The happenings of the day, both at Guide
Dogs for the Blind and with my own chapter members, serves to remind me,
and I hope to all of you as well, that we have the tools, specifically
ourselves, to ensure that CCB continues to lead the way toward a better
future for Californians who are blind or visually impaired.
I'd like to conclude by suggesting that this magazine can be the means for
future dialogue on what you, our members, think of where we are, what we're
doing right, what we need to do differently, and our biggest challenges.
Together, with shared ideas and effort, we can move mountains with our
commitment to CCB.
SUCCESS STORY: DON KATZ
by Cecile Betts
Blindness is no obstacle to operating a successful business if your nose
and taste buds are more important to success than your eyes. Don Katz, 29,
the totally blind owner and operator of the Symposium Wine Bar in Irvine,
California, is living proof of this.
Don suffered spinal meningitis in 2001 just as he was starting his second
year in the Masters program at New York University. He was in a coma for
three and a half weeks and brain surgery was performed to relieve pressure.
He recovered but was blind and paralyzed. On returning to his parents'
home, he relearned to walk; feed himself; manage the activities of daily
living; and, in three months, read and write braille. I met him when he
came to the Braille Institute to play Scrabble and to socialize with blind
students.
Not giving up his dream of independence, he began searching for a location
to open a wine bar. He found the right one in Irvine, and went through the
arduous process of obtaining the required licenses for on-premise alcohol-
consumption and retail sales.
Today, the Symposium Wine Bar has attracted a loyal following and Don is
always on the lookout for new wines, which meet his standards, to add to
his wine list. His business cards are brailled as well as printed. He
hopes to build a national or world-wide chain of Symposium Wine Bars.
Given his courage and tenacity, I'm sure he will.
Don can be reached at don@symposiumwinebar.com.
SPRING 2006 CONVENTION REPORT
by Bonnie Rennie
Where can you go to recharge your CCB batteries: get those advocacy juices
flowing again; laugh, learn, and get leadership skills; find blind and
visually impaired people of all ages, ethnic, and experience spectrums and
diverse interests, all united together in common cause? That's easy,
attend a California Council of the Blind Convention.
Over 246 people registered for the convention, held from April 6-9 in
Sacramento. As expected, this convention was full of much-loved CCB
traditions: the President's Dinner and Saturday night banquet, the
hospitality room, First-Timers' Seminar, and exhibits featuring new
products of assistive technology, and items sold by our CCB chapters; and
then there is one of the most favorite traditions of all, sitting in the
general sessions hoping to hear one's own name called as the winner of the
next door prize (and our chapters come up with some pretty nice door
prizes).
I will share some of the highlights of the weekend, but it would be
impossible to cover all the important events and do them justice. In order
to feel what it was like to be there, the energy, power, the solidarity of
people learning how to effectively fight the good fight or better their own
lives; well, try attending next time and see what you think.
For those unfamiliar with the convention format, here's how it works. The
special interest affiliates hold seminars and meetings Thursday afternoons
and Friday and Saturday mornings. These affiliates encompass interests as
wide-ranging as those of persons with low vision, to users of adaptive
computers, guide dogs, braille and talking book libraries, the concerns of
students, seniors with vision loss, those involved with the rehabilitation
system, those combating domestic violence and hate crimes, and more. In
contrast, the general sessions, with individual speakers and panels, occur
Friday afternoon and evening, and Saturday afternoon. The Board of
Directors Meeting, which is open to the public, is held Thursday evening.
The convention ends Sunday morning following an interdenominational
devotional service and a business meeting, where the convention resolutions
are read.
For the balance of this report, I will describe some highlights of the
general sessions, and then there will be brief mention of some of what went
on at selected affiliate meetings. You will soon see that the biggest
challenge in attending a convention is trying to take everything in and
choosing what interesting events to attend.
Activities began Thursday morning. Sixteen intrepid CCB members walked the
corridors of the state Capitol Building, informing our legislators and
their staffs regarding CCB positions on various issues. If you have never
participated in this time-tested CCB tradition, it is impossible to convey
just how exhilarating and rewarding it can be. It really has an impact
when lawmakers and their staffs see and talk personally with numbers of
blind people.
Thursday also included a full day of leadership training where each chapter
could send one representative. These seminars are increasingly equipping
present and future leaders to better serve CCB and inspire us. There was
the usual set of social gatherings like the Welcome to Sacramento Party and
the Hospitality room at the end of each evening. The Thursday evening
Board of Directors meeting was, as expected, a good place to learn
everything from how our organization is doing financially, budget plans for
the next year, and what innovations, projects and challenges CCB is
embracing. For example, we heard about CCB's efforts to expand our fund-
raising through selected grant-writing.
Now we move to the many interesting speakers and topics of the general
sessions. We were honored to have Mr. Bill Lockyer, California's Attorney
General, provide an update on the enforcement of the civil rights of
persons with disabilities. He highlighted some recent successes and
struggles in this area and emphasized the theme, repeated by other
convention speakers, that in the quest to achieve our goals, it is vitally
important to make the time and effort to develop a relationship with our
local elected representatives and get on local boards. There followed a
presentation on academic adjustments and auxiliary aids at the post-
secondary level. The presenter was Amy Hunter, a staff attorney for the
Office of Civil Rights, Department of Education. More on this topic was
also presented at our student affiliate meeting and might make a good tape
presentation at a local chapter gathering.
The afternoon continued with another central focus of this convention,
emergency preparedness for vulnerable populations. In view of the events
of the last several years, including the hurricane Katrina experience, many
are looking at what they can do to be ready and how the media will
effectively communicate vital information by verbalizing what is now only
shown on a TV screen. A representative from the Governor's office
addressed current efforts to improve things. Then there was a wide-ranging
panel discussion on accessible voting in California; and, again, directing
feedback, both good and bad, on the usefulness of these machines to our
local elections officials was encouraged. It was even suggested that
visually impaired people consider applying to work at a polling place.
Friday night was jam-packed with interesting and useful information. First
came the item that everyone hopes each year will be short and sweet, the
Credential Committee report. Frank Welte, Chair, stated that things would
go smoother and faster if chapters turned in their dues and membership
rosters on time and delegates showed up promptly at the 8 a.m. Friday
morning check-in.
Next came a fascinating report, "Diabetes Research, 2006." Dr. Thomas Aoke,
M.D, a U.C. Davis professor, inspired hope by describing a new therapy to
treat diabetes. By going to his website, www.adria.org, you can learn
more. Diabetics in Action, the newest ACB affiliate, was one subject
offered by the next presenter, ACB President Chris Gray. He spoke of
energy and the work to be done by this affiliate, led by CCB's own Pat
LaFrance Wolf. Chris also updated us on a recent ACB advocacy situation: A
mother, in another state, had been denied access to a Ronald McDonald
House, so she could be with her young son for his serious heart surgery.
The reason denied? because she was a guide dog user. You will be reading
more about this in the Braille Forum.
One helpful thing about attending conventions is the variety of valuable
disability-related resources one can discover. The next speaker, Debbie
Bacon, was no exception. She is the project manager for the National
Resource Center for Parents with Disabilities. Her organization is called
Through the Looking Glass. She shared her experience of joy and struggle
as the blind parent of three, in the eighties, and what her group does to
reach out to disabled parents.
After a brief Federal report, where Frank Welte discussed the Braille Coin
Bill and the ACB legislative Seminar, and state report, presented by Dan
Kysor, we came to the final speaker of the evening, our CCB President, Jeff
Thom. His President's Report provided highlights regarding advocacy and
public education to improve public understanding and attitudes toward the
blind community. Then he got our attention by stating he was about to say
something that might not be popular. What was it? He first recognized that
the successes of CCB come from the consistent hard work of many members
working on the various CCB committees and affiliates, and then he gave some
straight talk about how important it is that those who volunteer and are
appointed to serve on these committees consistently participate in
committee work. Whether it's issues important to seniors, students, access
technology, information, transportation, Rehab, and a host of other
interests, it is the work of CCB committees that drives much of what we do.
Jeff helped us all re-evaluate our quality of commitment as committee
members.
We now proceed to the Saturday afternoon general session. It began with a
special Pledge of Allegiance led by a local Sacramento Girl Scout Troop,
one of whose members is Andrea Thom, daughter of President and First Lady
Jeff and Leslie Thom. They were poised and did a great job.
A touching moment occurred when Dr. Catherine Campisi, Director of the
Department of Rehabilitation, presented her update on the Blind Field
Services Division. You may remember how long and hard CCB and others
worked together to obtain a separate entity in Rehab for blind and visually
impaired persons. Dr. Campisi has continued to show her support for the
kind of quality services such an entity can offer. We do not know if she
was surprised to receive a Special Achievement Award from CCB for this
support, but she certainly was touched and pleased. She shared a little of
what it was like for her, growing up as a child with a disability,
conveying to us her understanding of how vital it is to have accessible
opportunities for all. In addition, Tony Candela, Deputy Director,
Specialized Services Division, DOR, explained the various activities they
are engaged in.
Frank Welte gave his Nominating Committee Report. The slate of nominees,
who will be elected at the fall convention are: President, Jeff Thom; First
Vice President: Mitch Pomerantz; Treasurer, Peter Pardini; Directors Ardis
Bazyn, Gabe Griffith, Louis Preston and David Jackson. At election time,
you can nominate other people from the floor.
Samir Shaibi, Living Skills Instructor, and Patti Maffei, Program Director
for students, explained why The Living Skills Center for the Visually
Impaired in San Pablo is different and why it works.
There followed a truly unique presentation by Cecilia Von Beroldingen,
Ph.D. Have you ever watched those forensic CSI shows on TV and wondered if
there was ever a real-life blind person doing the DNA work? Well, there is,
and Dr. Von Beroldingen's presentation was called "Under the Microscope::a
Blind Woman's Experience with DNA and Criminal Justice." She is Director of
the DNA Lab of California's Department of Justice. Pretty impressive, yes?
This might also make a good tape for chapter listening.
The afternoon concluded with a presentation from the acting warden of
Folsom prison on accommodating visually impaired inmates.
To veteran convention goers, Saturday night means The Banquet or the BTQ,
as we Braille ticket-holders affectionately know it. Ann Kysor, the
English voice of the California Connection (Lupe Medrano does the Spanish
version), was a delightful Mistress of Ceremonies. The banquet was rich in
all the traditional elements. There were the awards, mentioned in a
separate article; chapters presented donations to the general and
scholarship funds; and excitement rippled through the room as we awaited
the announcements of who had won the various drawings and prizes. As
usual, there was much laughter, banter and celebration of our
accomplishments.
The banquet scene is a large room crowded with noisy tables. While many
love to gravitate toward the people they already know, some are more
adventurous; they sit at a table and enjoy the discovery of who else is
sharing the evening with them, what interesting places from throughout the
state they come from, and what their chapter has been doing this year.
That is one of the things that makes the convention fun.
We proudly witnessed the chartering of The Randolph-Sheppard Vendors of
California affiliate and Central Coast Low Vision Council of San Louis
Obispo chapter.
Our keynote speaker, Mr. Stuart Wittenstein, Superintendent, California
School for the blind, described the latest trend and focus at the school
which is now striving to reach and equip mainstreamed middle-schoolers and
older students through concentrated summer and extended programs. It is
hoped that this latest shift will better prepare these young people from
throughout the state to make an effective transition to adult community
living. His talk was an encouragement to us.
After Sunday morning devotional services, the convention's last session was
called to order. This is considered our business meeting which includes
the financial report, some brief committee reports and debate on the
passage or failure of resolutions. See the separate article on resolutions
summaries. In many cases, resolutions that are passed become the vehicles
of action for CCB so they are worth understanding.
The convention adjourned before 11:30 a.m., and we could once again head
homeward with a sense of camaraderie and accomplishment.
I will conclude with a few words about what went on in our many special-
interest group meetings. At the Technology Seminar, there was an
interesting discussion on the history of adaptive computer technology given
by Humanware's Jim Holliday and enriched by Roger Petersen and others.
More technology to help us navigate city streets was shared by Mike May of
The Sendero Group. He presented the latest in global positioning devices,
always a popular topic.
The Friday morning Braille Revival League meeting featured one of our
members, Daveed Mandell, a blind journalist who does studio and live
reporting in the field for KPFA, a Bay Area radio station. As an effective
braille user, he related how he puts his braille-skills to work on the job,
and mixed examples of how new technologies must be mastered in radio work
and stories of how good old creative innovation, of the low-tech variety,
served him well.
Since dealing with the health care system is something we can all count on
having to do some time, a helpful panel of CCB members gave us some timely
tips at the Council of Citizens with Low Vision program meeting. We heard
tips like instructing hospital staff to first identify themselves and
explain what they are there to do, before they do it. Also, a visually
impaired visitor has rights, as does the patient. You can learn more by
going to the AFB website at www.afb.org.
The best way to benefit from the CCB convention experience is to be there;
but you can recapture some of the useful information provided by the
speakers and panels by contacting the Hayward CCB office and ordering one,
or a complete set of convention tapes. Many of these programs would make
excellent springboards for discussion at chapter meetings. Why not join us
for our fall convention, October 26-29 in Los Angeles. Check the
Connection for reservation and updated info.
LEMONADE ON THE ROAD TO RECOVERY
by Bill Tipton
[Before this story, Bill Tipton worked at Hewlett-Packard as a customer
support engineer. After losing his sight, and the ability to walk for some
time, he resumed his career at HP as a project manager, making sure
disabled HP employees had access to needed resources and could advance in
their careers. Bill is an active member of the Silicon Valley chapter. He
can be reached at billtipton@earthlink.net]
Have you ever wanted lemonade so badly you had nightmares and your tongue
felt like it was a piece of sandpaper or steel wool? No? Well, I surely
have! Let me explain.
A few years ago, I was critically ill; in a coma for three months;
hospitalized for seven more; and had many tubes and wires attached to me.
During this time I was on life support with a ventilator attached to a
tracheal tube in my neck and could not drink or eat anything for four
months. All nutrition was given through my intravenous line (IV).
I had many torturous nightmares during my hospital stay about being
thirsty. In my dreams, glasses of ice cold beverages were always just out
of reach, so close I could feel their coldness. I'd see people watching me
as I sat in my wheelchair trying to reach that glass, agony in my face, and
nobody would take the time to push it just a little closer. It was though
I was invisible to all those people staring at me. I was so thirsty, it
was pure torture.
My thirst was all I thought about while awake or asleep. I almost looked
forward to the interruptions of pain, sickness, blood tests, surgeries and
procedures; these things could take my mind away from thoughts of cool
beverages and how good it would feel to have a drink. I'd lie there
thinking of being able to walk over to the faucet, turning it on and have
cool running water come out; about filling a glass of water and drinking it
down gulp after gulp until it was empty. I passed the weeks and months not
only thinking of drinking water but also of orange juice, iced tea, tomato
juice or anything cold. My best daydreams were of the day I could leave
the hospital, walk to a refrigerator, open it, and grab an ice-cold drink.
I thought this would be a dream come true. I thought how lucky all the
people, not in my situation, were to be able to get drinks whenever they
wanted; perhaps not even realizing they have it so good and taking it all
for granted.
My mouth was so dry for so long I wondered when this part of my torture
would end. The nurses were allowed to swab my tongue with cotton swabs
with a little lemon flavor but this did little to quench my thirst. About
a month or so after awaking from my coma I was allowed to have a little
crushed ice. The compassionate nurses would give me only about one
teaspoon, or less, as a treat I greatly anticipated. It was such a joy and
temporary relief. I'd try not to swallow the ice or chew it too quickly,
preferring to let it linger to refresh my parched mouth and tongue. When
the nurses switched shifts, I would ask for more ice but eventually they
caught on and put a big sign above my bed which said "patient not allowed
anything by mouth." This was, according to the doctors, because my body was
not ready for ice.
I eventually was given two rehabilitation therapists and my therapy
started. They would have me do things to build up my strength,
coordination and orientation. As undesirable outcomes of my illness, I had
become totally blind, could not sit up in bed or walk. As you might
imagine, I needed all the therapy I could get. Most of it was very
difficult and painful at times.
One day I was told that, as part of my therapy, I would get to make and
drink lemonade. I thought I was hallucinating or dreaming. Drinking
lemonade would be much better then the things I normally did in therapy.
First, though, we had to get me to the location before my fun could start.
I could barely move, and could not walk, so getting me in or out of bed was
always a challenge. The therapists used a crane-like device called a Hoyer
lift to hoist me from the bed and lower me into a wheelchair. Dangling
from this device by straps was very relaxing and soothing to my body. Once
I was lowered into a sitting position in the wheelchair, the straps were
removed, the IV bag was transferred to a hook above me and I was ready for
my journey.
I had no idea where we were going or what the therapists were carrying so I
could make lemonade and I didn't care, I just knew I would be drinking real
liquid, that was all that mattered. I had a great big smile on my face as
they wheeled me by the other patients, with my IV bag hanging high above me
on its hanger. Since I couldn't see anything, I just imagined being
wheeled by other patients' beds. I looked around as I smiled, pretending
other patients were watching as I paraded by. I could have been smiling at
the walls for all I knew. I imagined my therapists smiling as well. The
love and joy in their voices made me feel they really wanted to help me get
well and be whole again.
I was so excited, it felt like Christmas! Instead of never tasting thin
fluids on my tongue and throat, I was on my way to drink lemonade! I say
thin fluids because what little liquid I did get had a thickening agent
added, causing it to be gritty with tiny granular particles. They did this
to prevent me from aspirating fluids into my lungs and getting pneumonia.
Imagine drinking thick room-temperature water or thick and gritty orange
juice, not very pleasant. Now you can see why drinking any cold refreshing
fluid would be so exhilarating, especially lemonade.
Soon we arrived at our destination and my therapist pushed my wheelchair up
against a sink, handed me a plastic pitcher and told me to fill it about
three quarters full. Since doing most anything was new to me as a blind
person, making lemonade was a challenge. I reached to find the faucet
handles on the sink and realized I had no way to tell which faucet was hot
water and which was cold. Both handles felt exactly the same to me, and
since I prefer cold lemonade I did not want to fill the pitcher with hot
water. Realizing my dilemma (no doubt from my baffled expression), one of
my friendly therapists gently put my hand on the cold faucet where I
proceeded to fill the pitcher until I realized I wouldn't know when it was
three-quarters full. Since, according to the therapists, the directions
required this much water to make the lemonade, I explained my predicament
to them. They suggested I use my fingers. I quickly shoved my hand into
the pitcher to test the water's height. Once the water felt like it was at
the proper level I turned it off. The pitcher felt heavy to me with my
weak hand and arm, so after getting a good grip with both hands, I gently
pulled the pitcher out and away from the sink while trying not to spill
anything.
I was then ready for the lemons, wondering how I would cut them without
sight. I reached out, ready to grab a lemon or two, but was handed a
plastic bag. I asked, "What is this?" They told me it was powdered
lemonade mix. I was a bit relieved because being weak and clumsy, I
thought I might cut myself if I attempted to cut lemons. I gently opened
the Ziploc baggie and poured its contents into the pitcher. I did not have
to worry about measuring because my therapists had already done it.
Setting the pitcher on my lap, as I sat in my wheelchair, I positioned it
firmly between my legs, to hold it snugly, and proceeded to slowly stir the
lemonade, with the wooden spoon given to me, so as not to spill anything.
When the therapists told me I had stirred enough, we added some ice cubes
and I stirred some more to make the lemonade ice-cold. As I stirred, I
imagined drinking this delicious beverage. I couldn't wait!
When it was stirred, I poured some into a plastic glass, judging its
fullness by its weight and cheating by sticking my finger into it. (The
therapists must not have trusted me with a real glass.) I offered it to
the therapists (being the gentleman that I am, ladies first). In
amazement, neither wanted it, probably because I had stuck my fingers in
it; but since I couldn't see the expressions on their faces, I never knew.
In any case, I was ready to indulge in this cold, delicious, thirst-
quenching lemonade. I took a sip and couldn't believe how good it was. My
taste buds went wild and my mouth seemed to suck it up before any of it had
a chance to go down my throat. Some did make it, and I felt this large
quantity of cold, icy liquid going down. Soon the glass was empty. I
poured another and offered it to my therapists and, again, they declined.
I couldn't believe it. They said go ahead and have another glass. I
thought I must be in heaven! I slowly poured another glass with my finger
in it, waiting until I felt fluid touch it. I drank this glass down very
quickly, barely letting it hit my tongue. I took the pitcher and swooshed
the liquid around to test its fullness. I heard the lemonade swooshing and
could feel its weight. This instantly widened my smile, knowing there was
still more of this delicious, cold drink left. Still trying to be a
gentleman, I asked the therapists, one last time, if they wanted a drink.
They both said no, so I filled my last glass; drinking more slowly,
savoring every last drop of pleasure as the coolness, wetness and delicious
taste of this lemonade delighted my senses. I did not know when I'd be
able to have another drink and wanted this pleasure to last forever. All
too soon the glass was empty. I then washed everything as this was a part
of my occupational therapy lesson.
After this thirst quenching adventure, my wonderful therapists wheeled me
back to my room. All the way back I felt like I was in a daze and very
contented. Before I knew it, I was in bed. I pulled the thin hospital
covers up to my neck as I got comfortable. I just lay there thinking about
how enjoyable a nice cold glass of lemonade can be. As I lay there in my
own darkness, still smiling from the great experience I'd just enjoyed, I
thought this was really a very good day and you sure can't beat a cold
lemonade.
SUMMARY OF RESOLUTIONS, SPRING, 2006
SUMMARY OF 2006 SPRING RESOLUTIONS BY Winifred Downing
With Lucy Greco as Chair and Mitch Pomerantz as Vice Chair, the Resolutions
Committee presented to the spring convention in Sacramento 12 resolutions
(a 13th was tabled.). Other members of the committee were Winifred
Downing, Eugene Lozano, Ken Metz, and Dirk Neyhart.
Resolution A1-06 expressed the organization's gratitude to Alpha Phi Omega
for the unusually large number of helpful volunteers who assisted members
throughout the convention.
Resolution A2-06 commended the staff of the Arden West Hilton Hotel for its
help before and during the convention and the hotel management for updating
all its signage compatible with the current signage required by the
California code of regulations, title 24, of the American with Disabilities
Act.
Resolution A3-06 strongly urged the Department of Rehabilitation to
terminate the practice of locating counselors on the premises of private
agencies serving clients of the department since this arrangement "may
negatively impact clients and provide the private entity with an enhanced
opportunity to assert undue influence on decisions." If action does not
occur, the matter will be referred to the advocacy of the Blind Advisory
Committee.
Resolution A4-06 referred the matter of glucose monitoring access for blind
diabetics to the American Council of the Blind (ACB) since the subject is
of national significance, and the manufacturers involved market products
for the entire country. It is estimated that 12% of those losing vision in
a given year do so from effects of diabetes. Managing capillary blood
sugars through the use of blood glucose monitors is the most critical
aspect of diabetic care in avoiding effects of the disease like renal
failure and diabetic retinopathy. Though the size and weight of the
monitoring devices used by sighted people make them easier and more
convenient to use, the manufacturers have expended no effort to make these
improved products accessible to blind and visually impaired persons. The
ACB is requested to send copies of this resolution to all manufacturers,
including Johnson and Johnson, Life Scan, Metronics, Becton and Dickinson,
and Roche Diagnostics. ACB is also requested to develop the language for
federal legislation mandating that manufacturers of blood glucose monitors
be required to provide accessibility in their products.
Resolution A5-06 was tabled.
Resolution A6-06 directed the president of the California Council of the
Blind (CCB) "to form an ad hoc committee to study the feasibility of, and
determine the guidelines for, a CCB first-timers fund to provide that at
least one new member would be present at each state convention who could
not otherwise do so."
Resolution A7-06 criticized Freedom Scientific and Humanware for poor
quality in new devices, lack of adequate technical support, and long delays
and shoddy workmanship on products returned for repair. The resolution
requested the Department of Rehabilitation to inform clients about the
issues set forth in this resolution and asserted that if the organizations
concerned do not address these problems, the resolution will be introduced
for consideration at the American Council of the Blind national convention
in July, 2006.
Resolution A8-06 set forth the reasons why changes and additions are
necessary for the braille code and asserted that the CCB "expresses its
support for additions specified in the Nemeth Uniform Braille System." The
resolution will be sent to ACB for consideration at its national convention
in Jacksonville, Florida.
Resolution A9-06 criticized Freedom Scientific for failure to produce taped
tutorials of versions after Jaws 4.0, and for no longer furnishing tapes
with live demonstrations of new features made available (the FS Reader not
being an adequate substitute), and urged the organization to resume these
practices to support independent learning by users of Jaws. The
resolution will be sent on to ACB for consideration at its national
convention.
Resolution A10-06 advocated amending the "California Code of Regulations,
Title 24, Part 2, Chapters 11-A and 11-B to require highly contrasting
strips at the edges of steps descending from decks into the water in public
pools and other places where the deck transitions to the water, such as
deck edges and diving boards" are not easily apparent to persons with
impaired vision.
Resolution A11-06 concerned "alternative fuel vehicles (including hybrids)
that are silent during deceleration, acceleration, and while idling" since
they move quietly on streets and roads and so cannot be perceived by blind
and visually impaired persons. The resolution urged ACB "to place the
highest priority on pressing for federal action to regulate the operation
of 'quiet vehicles' in the manner that trucks are required to have sound
emission devices when in reverse gear." ACB was also urged "to express to
manufacturers of these vehicles the urgency of developing design
modifications and enlisting the assistance of the Institute of Traffic
Engineering, the Transportation Resource Board and other governmental and
nongovernmental organizations of traffic engineering professionals in
mitigating this safety hazard."
Resolution A12-06 commended Cingular, Sprint, T-Mobile, and Verizon
Wireless for offering free 411 services to its blind and visually impaired
customers. This resolution will be forwarded to ACB for consideration at
its national convention.
Resolution A13-06 called upon CCB to take action to see that veterans'
homes, such as the California State Veterans Home provide for veterans (a)
all print communications and materials in alternative formats such as
braille, large print, audio and electronic media; (b) licensed or certified
specialists in blindness and low vision; (c) home staff such as cafeteria
workers with in-service training to learn how to work with veterans who are
blind or visually impaired; and (d) architecturally accessible homes for
veterans to live in. The U.S. Department of Veterans Affairs pays a per
diem for each veteran in the California State Veterans Home, this amount
expected to cover all veterans' basic needs. Copies of this resolution are
to be sent to the California Department of Veterans Affairs, the directors
of the homes in California, and the directors of the Veterans Integrated
Service Network (VISN) 21 and 22.
IN MEMORY OF BOB CARTER
by Christopher Gray
[This is a transcript of an audio-tape played for the Silicon Valley
chapter at its January, 2006 meeting.]
I first met Bob Carter in 1989 when he and I both worked for the IBM
Corporation. I was just beginning my career at IBM as a technical writer;
and Bob was just finishing his as a distinguished programmer, planner, and
person who, among so many other things in his life, had represented a major
part of IBM for the World Olympics early in the 1960's. Bob was looking
forward to retirement but wanted to be doing things with people, wanted to
have an active life outside of work, and a good social life.
He phoned me one day. He'd heard through friends of his about me, knew I
lived in South San Jose (he always did his research well), and wanted us to
have lunch and talk about being my volunteer reader. I was a bit taken
aback by this because it isn't often that someone calls you and asks to
volunteer, but that was Bob's way. We did have lunch, had a wonderful
time, and knew we would get along well.
Within a month after his retirement, Bob and I began a reading relationship
that lasted until 1997. Well, as you might imagine, Bob read a lot of ACB
and CCB-related items. At first he was amazed at how much we didn't get
along, but later he was more amazed at how much we actually did get along
in the end; and within a couple of years, he got really interested in the
organizations. As he read for other blind people, he came to understand
some of the difficulties of the issues and became more active in the
Silicon Valley Council of the Blind.
By 1993, he was not only hooked on reading and being a volunteer, but was
also hooked on being involved with ACB and had decided to volunteer at the
ACB convention. Unfortunately, shortly before the convention, he suffered
a massive, and rather debilitating, stroke. But Bob asked to be checked
into the most difficult rehabilitation center his wife could find and get
him into. He worked hard. He came back from being able to not even roll
over by himself in bed, to driving, reading, and having a very active and
fulfilling life once again.
When I went to work for Oracle, Bob would spend sometimes three and four
hours weekly helping me transition from one way of doing things to the new
software environment. For a while, believe it or not, he even worked as a
kind of paid reader and contractor, helping me get up and going in this new
position.
Later on, as you know, he served as treasurer of this organization and did
so very well. Bob Carter was truly a remarkable and wonderful individual.
He exemplified volunteerism, he exemplified energy, and he never blew his
own horn to do it. He always worked with dedication; with caring; with a
great sense of what, perhaps, could be accomplished by the work that he,
and the people he was volunteering for, could do together. It's not
something that we find very often.
I think the last thing I'd like to say about Bob, and to highlight the Bob
Carter I knew and the things that were so important to me about him, is the
amazing compassion he had for other people. He didn't wear it on his
sleeve, he didn't talk a great deal about it, but to know Bob well was to
come to understand how much compassion he had for others and how much he
really cared about them. I'm so glad that Silicon Valley is having a
service for him today and I know that, for me, Bob Carter is someone to
whom I owe a great deal, someone to whom I aspire to be similar to, and a
person who will shape a part of my life as long as that goes on. So thank
you for having this session, thank you Bob for being who you were, for
making us want to have it, and thank you all very much.
SAN FRANCISCO CHAPTER, CALIFORNIA COUNCIL OF THE BLIND
GOOD NEIGHBOR FUND AWARD
by Winifred Downing
The goal of the California Council of the Blind (CCB) is to ensure greater
economic opportunity and a richer quality of life for all people who are
blind and visually impaired.
In keeping with this goal, the S.F. Chapter of the CCB will award prizes of
$1,000 and $1,500 to two blind individuals who can demonstrate a
significant need to further their education, advance their career, or
improve their general welfare, a need which cannot be met through other
funding sources.
The $1,000 prize is designated for a student in grades 6-12. The $1,500
prize is available to anyone who meets the requirements listed below.
Applicant must live in San Francisco, Marin, Alameda, Contra Costa, or San
Mateo counties.
Applicant must submit documentation of legal blindness from an appropriate
vision evaluator (e.g. ophthalmologist, low vision evaluator).
Complete applications must be postmarked and sent to: Charlie Dorris, 966
Union Street, SF CA 94133 by September 30, 2006.
Applications will be reviewed by the Good Neighbor Fund committee.
Candidates may be requested to meet with the committee for a personal
interview. The awardees will be notified by November 30, 2006. The award
presentation will take place during the chapter's Christmas luncheon on the
first or second Sunday of December, 2006.
If you have any questions regarding the Good Neighbor Fund or need an
application in braille, please contact Charlie Dorris: 415-775-0487 or
tyreedorris@aol.com; Ellie Wong: 415-378-6079 or elliesf@hotmail.com; Linda
Porelle: 415-586-2622 or lporelle@sbcglobal.net; David Jackson: 415-239-
1873; Denise Senhaux: 415-567-8033.
MEMBERSHIP COMMITTEE REPORT, SPRING 2006
by Ardis Bazyn
First of all, we missed Rhonda King at our membership meeting due to her
family emergency.
After introductions, we talked about new membership ideas. One of the
participants suggested that we have more information available in Spanish
besides just the Connection. Items might include brochures and information
regarding vision loss. Another member suggested having joint events like
Christmas parties and seminars, which might encourage more people to
attend. Another said that groups could ask a band to play for an outreach
or dance event.
Other topics were discussed such as having speakers on other subjects
besides blindness-related ones; tips for those using new technology; and
break-out groups if a split existed between those interested, and those
not, in technology were in attendance.
To determine how we might encourage new people to join a CCB chapter,
committee members were asked why they joined. Each one said they were
invited by a friend or acquaintance. Some had heard about CCB, or attended
CCB events or conventions, but the invitation was what counted most in
choosing to join a chapter. Therefore, I want to encourage you to invite a
blind person or friend to visit your chapter or one nearby. All of our
chapters have contact information on the CCB website, www.ccnet.org. Have a
special "invite a friend" day!
Two new affiliates were added this spring: the Central Coast Low Vision
Council and the Randolph-Sheppard Vendors of California. Also, the Spring
Membership Incentive Award went to the San Gabriel Valley Chapter for
adding 11 members since last spring. Congratulations! At the fall
convention, the chapter or affiliate gaining the most members between the
spring and fall will receive the Fall Membership Incentive Award.
The Chapter of the year Award went to the San Diego Chapter. This award is
given to the chapter with the best chapter project making a difference in
the lives of blind and visually impaired people. I've included the letter
received from their chapter as one example of a good project. The San
Francisco Chapter also submitted a great letter about their chapter project
relating to providing an ongoing grant to assist a visually impaired
person. Get your creative juices flowing. These letters are due by
February 15, 2007.
The San Diego Chapter's letter follows:
San Diego Chapter, California Council of the Blind
Lee Morton President, c/o Blind Community Center
1805 Yips Street
San Diego, CA, 92103-5298
February 10, 2006
Dear Rhonda and Ardis:
I'm writing on behalf of the San Diego Chapter. I am nominating the
chapter for solving a problem we were having with our Metropolitan Transit
System, (MTS). In late October, we got the word that the MTS was planning
a major overhaul of the bus system in San Diego County. Virtually every
route in the system would be subject to change. Meetings were scheduled
all over San Diego to discuss the changes and get input from riders.
Unfortunately, the only way to find out what the changes were was to get
the information from a web-site that was totally inaccessible. It was even
impossible to get a commitment from them as to the exact location of their
first meeting. Finally, Jerry Wilson and I went. We were asked our
opinion of their changes. I said that I needed to know what they were.
The representatives from the bus company gave me the same answer, "Get it
off the Internet." I insisted that their site was inaccessible.
They said they'd look up a couple of routes for me. I waited for about 20
minutes. They didn't have many of the proposed changes with them. It
became apparent to me that they weren't really willing to get all the
information out to us.
The members of our chapter weren't happy with our report. We decided that
we could choose to handle it by going to the city, or going to the media.
We chose the press. On KUSI, channel 51, there is a feature known as "The
Turko Files." Mr. Turko, who has a legal background, helps listeners with a
wide array of problems. As President, I called and we filmed the feature
on November 14. As part of the filming, he showed some of our members
boarding buses, interviewed us about the transit system, and showed me
trying to get the information from their website.
Mr. Turko also interviewed Linda Woodbury, the Disability Services
Coordinator for San Diego. Ms. Woodbury is also visually impaired and
couldn't get the information about their changes either. After our
grievance was aired, the MTS scheduled 2 meetings with members of the
visually impaired community. People all over San Diego, who knew nothing
about the proposed changes, started paying attention and getting involved.
The MTS was originally going to bring their changes to their board and
schedule public hearings with their final recommendations in January. They
ended up going to their board in February, and holding their final public
hearings in March.
Mr. Turko had interviewed a member of the County Board of Supervisors, who
is also on the MTS Board of Directors, and he promised to make sure they
offered information concerning major changes in several formats. Linda
Woodbury's office has been training their staff on working with the
visually impaired. I don't know what the final outcome will be with
respect to the changes, but at least we will know what they are. They have
been reaching out to us thanks to the television coverage. If we hadn't
gone to the media, I think the foot print of our transit system would have
changed and nobody would have known until it was too late.
I know I have gone on but I want to add that when we have the convention
down south, I think Michael Turko, the reporter that did our feature,
should get some sort of recognition. He didn't approach the story with the
idea that the internet could never be accessible; just that their site was
not. The point was made that we needed to be considered when major changes
like this are proposed, and be treated with respect.
I want to thank the committee for considering us, and I look forward to
hearing from you. I'll see you in Sacramento.
Sincerely,
Lee Morton, President
SUMMARY OF CCB BOARD TELECONFERENCE MEETING
February 13, 2006
by Rhonda King
Ann Kysor was welcomed to her first Board meeting. Al Biegler and Louis
Preston were absent. The agenda was read followed by the Minutes for the
November 28, 2005 teleconference meeting.
Peter Pardini reported that the deficit for 2005 was $71,510; finances for
2006 showed revenues at $63,090, and expenses at $26,674, making a
difference of $36,415.
Jeff gave an update on the grant writing project being conducted by Pat
Borison. Several grants were sent out. One was rejected, but others were
scheduled to be sent out in the spring. Another 40 hours were approved for
this project; but if funds are not realized the project would not be
renewed. Pat has done an outstanding job and has learned much about this
organization, so it was worth the investment.
The Board approved the purchase of a new computer for Dan Kysor, CCB
Governmental Affairs Director, because the old one was no longer
functional. To avoid conflict, Ann abstained from voting on this issue.
A new chapter and affiliate were to be chartered at the spring convention
providing all the criteria were met. They are the Central Coast Low Vision
council of San Louis Obispo and the Randolph-Sheppard Vendors of
California, and each will be awarded $500.
Current and future fund raising topics were discussed. The Scholarship
Sweepstakes tickets would be drawn at the spring convention, with cash
prizes totaling $2000. It was approved to sell fifty fleece-lined jackets
bearing the CCB logo and motto at the fall convention. Jackets will cost
30 to 40 dollars each. Two round-trip tickets from Southwest Airlines were
being sought for the Fall Sweepstakes drawing. A cruise is also being
considered. Other ideas were scheduled for discussion at the spring
convention.
It was noted that convention reports in the Blind Californian should
contain more information, especially on guest speakers at general sessions.
The Board approved allocating $500 to the Durward McDaniel Fund for first-
time convention goers at ACB conventions. A list of the funds to be
allocated is to be sent to Peter so this information would be available for
the Budget and Finance Committee meeting to be held in Hayward on February
25.
The board discussed a ballot-initiative requiring individuals to give
notification to commercial business owners of alleged ADA violations prior
to filing a suit. Dan Kysor is the liaison to the steering committee
working on this issue. This initiative will have a negative impact on our
rights. The CCB Governmental Affairs Committee voted to oppose this
initiative at their last teleconference meeting.
The title motto of the CCB video has been changed, and information about
the video is to be discussed at the spring convention board meeting.
Descriptive and non-descriptive versions, as well as DVDs, are being made.
Mitch says the video is the "factoring tool" for the Speaker's Bureau.
Ardis spoke about the HAVA bill and the recommendations the task force had
made to the Secretary of State. Viewing of three voting systems to be
certified was scheduled for February 17. All-mail ballots are being
considered by some counties but this is contradictory to HAVA (Help America
Vote Act), which mandates accessible voting machines.
The meeting adjourned.
CCB AWARD WINNERS
by Catherine Skivers, Chair, CCB Awards and History Committee
On behalf of the Awards and History Committee, I'd like to thank those who
sent wonderful letters nominating worthy candidates for awards in 2006.
The Publications and Membership Committee presents two awards, and their
reports will be found elsewhere in this issue.
We were pleased to welcome Winifred Downing into the Hall of Fame. Those
of you who regularly read this magazine and articles in the Braille Forum
know all about Win and her writing ability. She has been an advocate for
braille for many years and has taught it to many people. She has a great
family and helps more people than you can imagine. She was quite surprised
when she received her plaque.
Darlene Dusseau from Sacramento received the Community Service Award. She
is a lady who didn't allow her loss of sight to stop her from creating
employment for herself and establishing a training program, being used
throughout the state, to help blind men and women get ready for employment.
I wish we had room to include information received in her nomination
letter, but I'd like to tell you that she really deserves recognition.
We gave two Humanitarian Awards. Recipients can be either an organization
or an individual that has assisted blind people in general, or CCB and its
affiliates in particular, to an extraordinary degree. The recipient may be
blind or sighted. One award went to the EYE-DAS Club in Glendora. EYE-DAS
stands for Eye Diseases Are Serious. This group was founded thirty years
ago by Ida Fracasse. She and her husband have produced newsletters, found
clubs to help provide transportation to and from meetings for those who
can't get there any other way, have speakers at every meeting, and have
many worthwhile programs for their members. Both Pat and Perry Wolf are
past presidents of this club, and Phil Obregon currently serves in this
capacity.
The other Humanitarian Award went to Corporal Glenn Walkup of the Martinez
police department. In November, he was called to an Amtrak train in his
city to arrest a blind passenger and her guide dog because she chose not
to move from where she was seated with all her belongings. Corporal Walkup
displayed a knowledge of the ADA and straightened out the situation in a
most professional and courteous manner, and, best of all, the lady and her
dog continued on their way on the train. Because Corporal Walkup was a new
father, he was unable to attend the convention banquet, so Ed Branch drove
Don Queen and myself to a Rehab Blind Advisory Committee meeting during the
day of April 19th and, in the evening, we presented Corporal Walkup's
plaque before the Martinez City Council. Margie Donovan and her friend
were also in attendance, and people in Martinez seemed pleased and proud of
the award. We felt the Corporal really deserved it.
We generally make the presentation of awards at the banquet on Saturday
evening at the convention. However, we had learned that our Special
Achievement award winner would not be attending the banquet. During her
Saturday presentation to the convention, we interrupted Dr. Catherine
Campisi and surprised her with a presentation of our own, the Special
Achievement Award. As director of the Department of Rehabilitation, Dr.
Campisi has been very generous in sharing time and ideas with blind and
visually impaired people. Unlike some of her predecessors, she has never
favored one group over others she serves. She seemed genuinely surprised
and pleased with her award. We had a good time talking about what a great
person she is and pointed out that maybe part of her understanding of blind
people comes from the fact that she is married to Ralph Black, a blind
lawyer, and her in-laws, Joan and Keith Black, are long-time CCB members.
It's not to early to begin thinking about people you know who are
outstanding in providing service or assistance to blind and visually
impaired people. Do take the time to nominate them for an award in 2007.
Sometimes people are nominated for one award but another seems more
appropriate. In this case, the committee places their name with the award
that best describes them.
I have a terrific committee and want to thank its members for all their
hard work. We all agree that this committee is one we enjoy taking part
in. The members of the Awards Committee are Catherine Skivers (Chair),
Roger Petersen, Gussie Morgan, Bernice Kandarian, Don Queen, Al Gil, Chris
Gray and Joe Smith.
PUBLICATIONS AWARDS
by Bernice Kandarian, Publications Committee Chairperson
Competition for this year's awards was fierce, given the high quality of
the writing in last year's Blind Californian. The procedure by which the
awardees were chosen was as follows: A list of eligible articles was
compiled and sent to all members of the Publications Committee. They
ranked them independently, giving 3 points to the article they thought
best in each of the two categories, 2 for next best and 1 for third best.
The rankings were received and tabulated by the chairperson and the awards
were given to the article in each category that received the most points.
In the Lifestyle category, Honorable Mention went to "Out of the Dog
House: Savvy's Story" by Ann Kysor and "Her New Love" by Cecile Betts.
The award went to Jo Carpignano for her article, "River Rafting, Anyone?"
Among the issue-oriented articles, Honorable Mention went to "The Grand
Old Duchess" by Keith Black and "independent Living is an Attitude" by
Louis Preston. The award went to Jeff Thom for "The Next 70 Years:
Floating on a Sea of Change."
Thanks to the committee for the hard work. Keep up the good writing so
our decision next year will be just as challenging.
THANK YOU
by Kevin B. Duggan
June 1, 2006
Dear California Council of the Blind:
At the 2006 Spring California Council of the Blind convention in
Sacramento, Society for the Blind's Career Developer, Darlene Dusseau, was
honored with a Community Service Award. On behalf of the clients,
volunteers and staff of Society for the Blind, I want to thank you for
acknowledging the fantastic work Darlene is doing in helping to transform
the lives of Californians.
When she joined Society for the Blind in 2002, Darlene had a goal of not
only helping people to find jobs, but assisting them in building confidence
and skill-sets to a level where they could obtain competitive employment in
a field of their choosing. With her characteristic energy and enthusiasm,
Darlene is making this possible by not only helping individuals determine
their best career path, but also meeting with potential employers in the
community and helping them understand that blindness is not a barrier to
having a great employee.
Darlene's patience, humor and dynamic speaking and teaching style are
legendary among her clients and coworkers. Her students appreciate that
she cares deeply, not only about their career path but about their personal
situations and goals. Outside of work, Darlene actively volunteers for
disability awareness organizations. She is a treasure to the agency, the
community, and those she serves.
I cannot think of a person more worthy of this prestigious award. Thank
you again for recognizing the great work of Darlene Dusseau.
Sincerely, Kevin B. Duggan, Executive Director, Society for the Blind
ON THE LIGHTER SIDE
by Evelyn Drewry
This story comes to me from a friend in Missouri. She and her husband had
only been married a year when this happened, and I'm sure we will all be
able to empathize with her for the panic she must have felt. Thank
goodness it all ended well. Now, I'll let her tell the story in her own
words:
"We had the flu at separate times, so we went to the drugstore and got a
'print thermometer,' the one with mercury in it that you have to shake, a
talent I have never learned. It was Rick's turn to be sick, and I took the
thermometer to school after taking his temperature so someone could read
it. It was a very hot Missouri summer day, and, unbeknownst to me, the
heat of the place on the bus where I was sitting on the way to school
caused the temperature to rise in the thermometer, giving Rick a
temperature of 106.5. I became very upset and called the doctor who wanted
to see him immediately. The receptionist at school called her college-aged
son who took me home, took Rick's temperature, and took him to the doctor.
When Rick's temperature was taken again, it turned out to be 99, which made
me feel quite stupid. They were really nice to me at school, felt I had
had enough trauma for the day, and let me stay home with Rick. I sure felt
stupid but was glad his temperature wasn't really 106.5. We laugh about
that to this day."
Before bringing this column to a close, I want to urge you to share your
stories with me. I'm sure there is a wealth of humorous stories among our
members, and I'm sure everyone would love to hear yours. So, please
contact me at mixed.up@cox.net. Until next time, remember to look on the
lighter side!
A BLUEPRINT FOR LOCAL TRANSIT ACCESS FOR THOSE WITH VISUAL IMPAIRMENTS
by Frank Welte
[Frank Welte is First Vice President of the San Mateo Council of the Blind,
San Mateo County. He can be reached at fwelte@sbcglobal.net.]
The San Francisco Bay Area Metropolitan Transit Commission coordinates the
activities of the numerous public transit agencies in the San Francisco,
California region. The Commission is working on a study about "transit
connectivity," the links between transit routes provided by the various
services. These routes connect at several "transit centers" or hubs. The
study is considering ways to make these interfaces between transit systems
more efficient and passenger-friendly. The following are my comments
regarding that document, and I hope that vision impaired people in other
regions will share these ideas with their public transportation planning
agencies.
The key to making transit connectivity work for people who are blind or
vision impaired is making it easier for them to find their way quickly,
safely and independently at transit hubs, especially when they transfer
between vehicles. The issue of wayfinding is considered at length in
Appendix A of the Transit Connectivity plan, and my comments on that
portion of the document are as follows.
Appendix A addresses the issue of wayfinding at transit hubs at
considerable length, and a great deal of creative thinking has obviously
gone into the preparation of this document. However, it fails to address
the wayfinding needs of blind and vision impaired transit riders.
It is essential that Bay Area transit hubs be modified to be readily
accessible and friendly to blind transit users. Experience has shown that
many vision impaired people who aren't comfortable getting around on public
transit will turn to the more expensive paratransit system to meet their
transportation needs; and others will avoid transit altogether, refusing to
travel and living as prisoners in their own homes. Thus, an agency that
fails to build good access for blind and visually impaired users into a
transit hub, usually because of cost concerns, is being penny wise and
pound foolish because it will end up spending far more on increased
paratransit costs in the long run.
In all of Appendix A, I found only three vague references to wayfinding
features of value to people with vision problems, and none of them
specifically mentioned the needs of blind people. The references were: 1)
vague clauses about following ADA requirements, 2) a brief sentence or two
about placing large characters with high color-contrast on signs, 3) use of
audio departure and arrival announcements at transit hubs. Make no mistake
about it. If the final transit connectivity plan fails to clarify these
vague statements and explicitly address the needs of blind transit riders
in all aspects of wayfinding, transit providers will design and build
transit hubs that are unnecessarily difficult for blind people to use.
History shows that providers won't get blind user-friendly access right
unless they're told specifically how to do it.
The Millbrae BART station is a flagrant example of this principle. Even
though it was designed and built at a time when the ADA was in effect, and
even though all the transit agencies involved had access to the advice of
accessibility advisory committees, the designers either ignored blindness
access issues, or they botched the implementation of those accessibility
features they did try to address. The station does include tactile guide
strips to help blind people navigate this most complex of all Bay Area
transit hubs, but these guide strips are made of a material that is almost
indistinguishable to a blind person's white cane. They don't work. The
braille signs on the elevators are confusing, and, as far as I can tell,
there is no braille signage in the bus boarding area of the station. Even
though there appears to be ample real-time signage at the station, almost
none of this information is provided in an audible format.
Appendix A should be amended to include the following recommendations.
1. Wayfinding guide strips should be installed and maintained at all
transit hubs, and these guide strips should be made of a material that is
easily detectable both by feel and by sound when encountered by a mobility
cane. The guide strip should provide a high color contrast to the
surrounding paving so people with limited vision can see it clearly. I
recommend that these guide strips be yellow, and the adjacent paving should
be black or some other very dark color. The Yellow Brick Road worked well
in "THE WIZARD OF OZ" and a yellow guide strip is a good idea for Bay Area
transit hubs. You can see some good examples of guide strips at the
Sunnyvale, Mountain View and Palo Alto Caltrain stations.
2. All bus stops should be marked with Braille and large print signs.
Normally, these signs should be placed on the same poles that hold printed
bus stop signs, and their placement should be according to established ADA
guidelines. The Hillsdale transit center in San Mateo and the Palo Alto
and Mountain View Caltrain stations provide good models for the use of
Braille signs.
In the case of bus stops that are indicated by overhead mounted signs
instead of pole-mounted ones, I recommend that a standard be established
for the placement of braille and large print signs. The location of these
extra signs must be consistent because a sign that is placed where a blind
person doesn't expect it is almost as bad as no sign at all. Perhaps a
bollard could be installed at each bus stop and the signs installed on the
bollard. The bus bays at the Millbrae BART station are marked by such
bollards, but they don't have signs on them. Obviously, everything I have
said here about bus stop signage also applies to train platform signage as
well.
3. Audio arrival and departure information should be provided in all cases
when real-time announcement systems make this information available to the
general public. If possible, relevant announcements should be made at five-
minute intervals so blind people won't find themselves waiting for long
periods of time and not knowing when, or if, their desired ride will
arrive. At Millbrae, I often connect with a late-night Samtrans bus.
There is an audible system that announces the departure of a bus five
minutes before that departure time. That's a nice feature, but it would be
nicer if I didn't have to wait out there in the cold and wet for nearly an
hour before I had any notice as to when my bus would show up.
When possible, different synthetic or recorded voices should be used to
identify different bus or train routes. BART's audio train arrival
announcement system is a fine example of frequent announcements and the use
of separate voices to announce different trains.
4. Appendix A makes extensive recommendations for providing wayfinding
information that goes far beyond that found on the simple bus sign. If
this information is needed by people who can see, it is doubly necessary
for people who can't. Placing such information on signs at the stations in
braille is probably not feasible, but an alternate method of disseminating
this wayfinding information to the blind community should be found. The
Los Angeles Metropolitan Transit Agency has addressed this problem by
preparing a nice wayfinding kit that provides a great deal of information
about the L.A. Metro rail system and each of its stations in braille,
large print and cassette. Bay Area transit agencies should do the same
thing, and this recommendation should be included in Appendix A.
5. MTC should consider the idea of promoting a unified system of audio
wayfinding information at transit hubs. Currently, infrared audio
transmitters (Talking Signs) have been installed at the San Jose and San
Francisco Caltrain stations and at one or two of the downtown San Francisco
BART stations. This concept has great potential for helping vision
impaired people to find their way in transit hubs, but such a technology
must be implemented throughout the Bay Area. The present Talking Signs
aren't used much because they are found in few locations, and blind people
aren't in the habit of routinely carrying with them the audio receivers
required to hear the available information. I believe that other
technologies, such as a system based on RFID transmitters, should be
considered for such an audio wayfinding system. The most recent
reauthorization of the Federal Transportation Act provides funds for a
pilot project to study such a regional audio wayfinding system, and the MTC
should do all it can to make the Bay Area the site of that pilot project.
6. Appendix A makes a passing reference to the installation of information
kiosks at transit hubs. This is a good idea. However, all such kiosks
must be accessible to people who are blind or vision impaired. The Trace
Research Center at the University of Wisconsin has had standards and
working models of accessible kiosks since at least 1995. Also, the
existence of talking ATMs and talking voting machines shows that making
information kiosks accessible to blind people is readily achievable.
7. As city planners adopt the "transit village" concept of land use,
planning neighborhoods around transit hubs to be attractive destinations
for riders will become increasingly important. Transit-friendly shopping,
dining, entertainment and housing will be more common, and blind people
will want to enjoy these amenities just like everybody else. However, even
a perfectly accessible transit hub will fall short of its potential if a
vision impaired rider has a hard time leaving the station and venturing
into the neighborhood.
Consider the Concord BART station. It is close to businesses, restaurants,
shops and housing. However, it is surrounded by a large parking lot you
must traverse before you can get out into the neighborhood. It is
extremely difficult for a blind person to find his or her way across the
parking lot between the station and downtown Concord. I speak from
personal experience.
The wayfinding features of each transit hub must also provide wayfinding
information to blind people wishing to leave the station in order to do
business in the neighborhood. The pedestrian signals at adjacent
intersections should be upgraded with audible pedestrian signals to help
blind people cross streets as they move between the stations and their
surrounding neighborhoods. Each transit hub should provide safe and
clearly detectable paths of travel between station and neighborhood.
8. Appendix A refers to train and bus schedules. While transit agencies
are making some efforts to make their schedules available in formats that
are accessible to people with vision problems, these efforts need to be
greatly expanded, and Appendix A should say so.
9. Experience shows that architects and engineers who rely solely on
published accessibility standards in preparing their designs will produce
poor levels of accessibility. Again, our experience with the Millbrae BART
station bears this out. The developers of all transit hubs must seek, and
follow, recommendations of consumers with various kinds of disabilities,
including vision loss, in order to insure that they install accessibility
features that will work in the real world and not just on paper. This
advice must be sought from the start of all transit hub upgrade projects
and not solicited as an afterthought after all the concrete has been
poured. I didn't get my first look at the Millbrae BART station until
December, 2002, just a month before the originally-scheduled January, 2003,
opening. At that late date, there was no hope of repairing the numerous
accessibility problems we found at that station, and they still exist in
2006.
CAREER CONNECTIONS: THE INTERVIEW
by Dr. Catherine Schmitt Whitaker
An important step in the job search process is the interview. While the
interview may last minutes or hours, there are some common features to an
interview. Being aware and prepared will strengthen your interview
experience.
One of the most important things to do before an interview is to prepare
for it. Preparation consists of two parts. First, research the interview
process and the company. When the interview is scheduled, it is
appropriate to ask the following questions:
1) Who will I be meeting with? (names and titles) 2) How long can I expect
the interview to last? 3) Will I participate in anything in addition to
the interview (writing sample, presentation, etc.)? 4) Is there any
material that you would recommend I review prior to the interview? (If yes,
is it available on the Internet or may I have it sent to me?).
Review the company's web site, read relevant documents, become familiar
with the company's mission, vision, values and other key company-
descriptors. If you cannot see the company logo, ask someone to describe
it to you. Review the company's organizational chart and annual report.
The more knowledge you have about the company and its culture, the easier
it will be to participate in the interview. Knowledge about the company
shows an employer that you are seriously interested in the interview and
the position.
Second, practice interview questions with someone else. The best way to
practice, and often the most intimidating, is to video-tape the practice
interview. This process is called a "mock interview." Centers that work
with people to find jobs oftentimes offer mock interviews. This experience
allows you to review the video-tape and receive feedback from a
professional on how well questions were answered. The professional will be
observing the video-tape and providing feedback to the following questions.
Are answers concise and to the point? Do researched facts support or
enhance answers? Is the rate of speech understandable? Is there
appropriate vocal variety throughout the interview? The mock interview
also enables you to identify any habits that are not appropriate for an
interview setting.
You will be interviewed by one person or a team of people, and the typical
interview has three sections. The first question usually is intended to
put the interviewee at ease (if this is possible) and is usually about
something familiar to the interviewered. The second part consists of
content questions to assess your knowledge, ability to respond in certain
situations and articulation skills. Questions may be direct inquiries into
your knowledge, seek to see how you describe and resolve a particular
problem or see how you respond to a scenario. The third section is for you
to ask questions. Use the information found through research to create two
to three intelligent questions for the interviewer(s). An additional
question, at the end of the interview, about the next step in the
recruitment process is appropriate. At that point, also ask for the
interviewer(s) business cards. After the interview, use the cards' contact
information to send a thank you letter to each interviewer.
Practice answers to the sample interview questions below. Create your own
questions to answer that will be applicable to specific fields of
discipline and types of positions:
1. Tell me about a time when you were able to be creative in your work.
How satisfied were you and why?
2. What do you think are the key success factors of this job?
3. How do you see your position helping to facilitate
customer/client/student success?
4. Describe your leadership style when you faced a complicated problem you
had to deal with on the job or in a community organization. (Follow-up
question) How did you identify and gain a better understanding about the
problem with your team?
5. Have you ever had to review proposals submitted by a vendor or another
team? Tell me about one of those situations.
6. Sometimes we have to work under new policies we don't agree with. Tell
me about the last time you disagreed with a new policy or procedure
instituted by senior management. Why did you disagree? What did you do?
7. Describe a complicated problem you have had to deal with on the job.
How did you identify or gain a better understanding of that problem?
8. Tell me about a situation when you had to adjust quickly to change in
organizational/departmental, or team priorities. How did the change affect
you?
9. Tell me about a time you made a bad decision and how you corrected it.
10. Where do you see yourself in five years?
11. How do you see your position fulfilling the mission statement of the
company?
12. How comfortable are you working with people different from you?
13. Why do you want to work at our company?
14. Was there a question you thought was going to be asked, but was not?
Please share the question and your answer.
15. Do you have any questions for us?
The interview is a two-way exchange. It provides an opportunity for the
employer to see if your qualities that shine on paper are true in-person
and if you will "fit" with the culture of the company. Likewise, you have
the opportunity to see if the employer and company culture are a fit for
you. Sometimes there is a fit and sometimes there isn't. Even if you
realize during the interview that there is no fit, remain respectful and
polite. Preparation and practice will increase your success with the
interview experience. Good luck!
FROM THE CAPITOL
by Dan Kysor, Director of CCB Governmental Affairs
A relatively peaceful and cordial climate exists this summer here at the
state capitol. Election year brings out a sudden desire to please the
voters so the typical budget stalemate is non-existent. An unexpected
surplus in tax revenue has brought the overall deficit from 4.5 to 2.5
billion dollars.
As this article goes to press, I and many other CCB members are
participating in Capitol Action Day, where Californians with disabilities
will speak to state legislative officials on many issues of concern to
them.
Of particular concern to CCB members are full restoration of SSI/SSP cost
of living increases, continued extensions of the MediCal drug coverage for
Medicare recipients, and watching threats to existing California access
laws.
CCB has two bills winding their way through the legislature: SB1451 and
SB1114. Our emergency preparedness bill, SB1451 by Christine Kehoe (D) San
Diego, is headed to the Senate Appropriations committee, whence it is
expected to move to the Senate Floor. This bill is the only bill related
to assisting persons with disabilities with respect to evacuation and other
aspects of emergency preparedness, and it was spawned from CCB resolution
2005-B-6. The bill would establish a permanent advisory committee within
the State Fire Marshal's office, composed of various representatives from
the disability community, key state agencies and the Office of Emergency
Services, to establish guidelines and procedures for evacuations, emergency
shelters and to undertake research and development regarding new
technologies to aid in dealing with emergencies. The bill would also
require accessible emergency publications to be made available to
Californians with disabilities.
There is currently no opposition and bill supporters include the
Alzheimer's Association; Californians for Disability Rights; California
Center for Law and the Deaf; California Hearing Loss Association; Long
Beach Chapter, California Coalition of Agencies Serving the Deaf and Hard
of Hearing; and the California Foundation of Independent Living Centers.
Our other bill, SB1114 by the Senate Committee on Human Services, Elaine
Alquist, Chair, seeks to require that 20% of all boards of directors of
agencies serving blind and visually impaired individuals be composed of
blind or visually impaired members, if that agency receives Department of
Rehabilitation funding. At this writing, the bill is in the Assembly
Appropriations Committee whence it is expected to move to the Assembly
floor and then to the Governor.
If you haven't already let the authors of SB1451 and SB1114 know of your
support, please do so now: Senator Christine Kehoe, 916-645-3133,
Linda.barr@sen.ca.gov; Senate Committee on Human Services, 916-445-8741,
Jack.hailey@sen.ca.gov.
CCB played a major role in getting two pieces of legislation withdrawn that
would have had a detrimental impact on California's access laws. The first
bill, SB1724, Runner, had a section struck which would have allowed the
California State University system to self-certify their own projects for
ADA accessibility rather than this being done by the Access Compliance Unit
of the Division of the State Architect. We are watching this bill closely
to make sure they don't add this section back. The other bill was a
measure to allow emotional support animals to be classed as "service
animals" through the establishment of a state ID card sold by a non-profit
organization known as Pets are Wonderful Support of Los Angeles. AB2278,
by Paul Koretz, was withdrawn due to the outcry of opposition from so many
CCB and ACB members and, interestingly enough, other animal rights
organizations as well.
A major threat to California's access laws was averted when sponsors of a
proposed ballot initiative, the Opportunity to Repair Act of 2006, withdrew
their proposal. This initiative, if passed by California voters in the
upcoming election, would have severely weakened access laws by imposing a
vague, lengthy and complex ADA notification process.
CCB strongly supports a bill authored by Assemblymember Tim Leslie. AB1847
would increase the state tax credit for building access modifications for
small businesses to that of the current federal tax credit. This is an
excellent opportunity for the opposing forces of the repair act initiative
to work together to increase building access. At this writing, the bill
has passed its first policy hearing and is sitting in the Assembly
Appropriations committee.
CCB also supports the following:
AB2486, by Ridley-Thomas, would authorize the investigation of potential
personnel by a nonprofit consortium or public authority, and include
criminal background checks, in the In-Home Support Services program.
Currently, this bill is in the Assembly Appropriations Committee.
A bill to allow in-home support workers to accompany recipients to
appointments, the workplace, etc. is AB3048, Mervin Dymally. This bill is
also in the Assembly Appropriations Committee.
Finally, a bill to establish a 30% "Extremely" low income housing element
is AB2634 by Sally Lieber. The bill is in Assembly Appropriations.
Although things are very quiet along the legislative front, we must be ever
watchful and prepared for new threats to programs we have worked very hard
to establish. Guide dog access, Title 24 access, detectable warning
regulations and California State University reasonable accommodation
requirements all narrowly escaped serious damage in the state legislature
last year. Very quiet?, hmm.
A LETTER TO THE EDITOR
To the Editor:
What a great time I have had reading the spring issue of THE BLIND
CALIFORNIAN, the first one that you, our new editor, has prepared
completely independently and the first one in 10 years that I haven't known
about ahead of time. In the beginning, I wondered why Frank Welte's
article was divided into two parts; but when I read the material, I
realized that it was entirely logical to have it that way to give a picture
of the whole experience and an adequate description of the legislation
considered. That decision required thoughtful awareness on your part and
confirmed my opinion that we are fortunate to have you as our editor.
I wanted to go with Frank Welte to that Moroccan restaurant, felt keenly
for Sylvia Lopez in her struggle against diabetes and blindness, and was
relieved to know that effort is being made to identify learning
disabilities in blind children ("Studying Spatial Abilities in the
Blindness Community"). Having had a child who was inconvenienced by
dyslexia, I've wondered what happens to blind students who have that
problem.
Every article was interesting; and I thank you, the writers, and the
proofreader who produced this fine magazine.
Winifred Downing
OUT OF THE DOGHOUSE: LET'S TRAIN US SOME DOGS
by Dan W. Kysor
Although many of us guide dog handlers personally know guide dog
instructors and even know blind people who train their own dogs, rarely do
we get the opportunity to view what it takes to train a dog to the task of
guiding. As many of you know, I am serving on the board of directors of
Guide Dogs for the Blind; and as part of "take a board member to work" day,
I spent the time with the training department, and what a day it was.
Veteran instructor Mike Del Raze and recently licensed instructor Darren
Walsh took me under their charge, and we loaded up the training van with
three dogs. I will refer to these dogs by number as I wish to avoid either
revealing information about a particular dog which may be outdated, or the
issues herein resolved, or give one a preview of their future guide. So
dogs one through three, all labs, were loaded into the van and we drove
into downtown San Rafael.
The logistics behind our day's workout were somewhat eased as my guide
Hilly was receiving a tooth extraction at the clinic, so I merely took the
arm of the instructor who was following the trainer working the dog. This
worked very well as the sighted-guide instructor explained everything that
was going on with the team ahead of us.
These animals were part of a string of thirty-four dogs in their finishing
stage of training, meaning that a class of students were to begin training
with them the following week. Darren gave a lengthy description of the
various issues that these dogs still were facing such as barricade decision
making, overhead barriers, etc.
Dog one was a very confident young lady who only seemed to hesitate on up
curbs. Those GDB alumni who know the "basic route" in San Rafael will know
exactly where we worked, except we crossed 3rd street. At every down curb,
Mike would get down to the dog's level, give her gentle praise and, of
course, a kibble reward. After we arrived back at the training van in
front of the downtown lounge, a brief huddle took place where both
instructors discussed dog one's performance. In this case, she passed with
flying colors, and there were no serious issues.
As the aching in my shin splints began to subside along with my panting,
the instructors, exhibiting virtually no signs of a sorrowful physical
condition as I did, unloaded dog two, a male yellow lab, and Mike and I
followed Darren.
We preceded to walk on a very lengthy route, with Mike explaining in
detail, like a sports commentator, what Darren was doing with dog two and
why. As dog two stopped at curbs, negotiated obstacles and interacted with
Darren, it became obvious that this animal did not have the confidence that
dog one exhibited. Mike constantly talked to dog two and showed tremendous
sensitivity and patience. Finally, a block before the lounge, dog two
would not proceed much further past the up curb; and both instructors
noticed a dog tied up in front of the coffee bean store. With rewards and
much coaxing, dog two still would not proceed past the tied up animal.
Finally, Mike coaxed the dog past and we met at the training van where a
conference ensued regarding dog two. Apparently, he is very timid around
pet dogs, and this was a continuing issue that threatens to bump him from
the program. Both trainers agreed that they should give him a little
longer, but it didn't look good for him.
We loaded him into the van and met dog three, a black lab, and I got the
opportunity to work him. It seemed to me that most of the training was
geared to my handling this dog, and I tried not to undo weeks of work.
Once I settled down and began to trust him, I realized he really was
guiding me like an old pro, and at one point, I even forgot how new to
guiding this animal was.
We completed an even longer route with no significant issues, and took a
hour lunch-break. Them, to my consternation, we loaded three more dogs
into the training van. The one thing I forgot about when accepting this
assignment was that for every dog trained, there is a route. Now I ain't
no spring chicken; and when I pointed this out to Mike, he said he wasn't
either. I wish I hadn't brought that up at all! Anyway, those last three
dogs were great and there were no significant issues.
One interesting area we worked was the Whistle Stop Bus Depot in downtown
San Rafael where there are many obstacles and diagonal paths. This isn't
used for student training; but after I experienced this route, I admired
how well, and how far, these dogs had progressed to get to the point where
they could negotiate this area.
What was it like training a guide dog? Well, I didn't get the whole
picture as I only participated in the finishing stages; but I can say it
must be a great payoff for the instructors to see a dog's final
understanding of what's wanted after patient and loving work. I was also
impressed by the thoroughness and painstaking attention to detail and the
trainer's ability to work in the dog's space.
Instructors have a wonderful sense of humor, too. About ten years ago, I
gave a new guide the forward command on a red light on Sacramento street in
San Francisco during training. When I made it to the up curb, I asked the
instructor what he does when someone crosses against traffic. He grinned
and said, "I close my eyes and pray."
As Guide Dogs for the Blind and other organizations consider the
possibility of blind or visually impaired instructors entering the field,
and as more individuals train their own dogs for guiding, I'm convinced I'd
not have the patience or the ability.
What do I think of blind guide dog instructors? With so many environmental
influences that are of a visual nature, I'd really question an instructor's
ability to get the right information relative to the dog. For example,
when dog two would not go down the sidewalk after the up curb, I had no way
of knowing there was a dog tied up. The instructors assured me that if I'd
been working the dog and tried forcing the animal to continue, it would be
ruined. In the next "Out of the Doghouse'" I will interview a working,
visually impaired guide dog instructor, and we'll get another view.
EYE RESEARCH EXCERPTS
by Dawn Wilcox, BSN RN
[For further information, contact Dawn Wilcox at thl@vistacenter.org or
call the Health Library at Vista Center for the Blind and Visually
Impaired, 650-858-0202 ext. 132; from 408 area codes: 660-2009 or 800-660-
2009; from 831 area codes: 639-6081 or 800-639-6081 (use ext. 132).]
1. From Vision Connection for Professionals, May 3, 2006: The insulin
sensitizer rosiglitazone (Avandia) could offer some degree of protection
for patients with diabetes who are at risk of developing diabetic
retinopathy, suggests a study reported at the Association for Research in
Vision and Ophthalmology (ARVO). Proliferative diabetic retinopathy is
characterized by angiogenesis [development of new blood vessels] of the
retinal vasculature. Rosiglitazone increases insulin sensitivity by acting
on the PPAR-gamma receptors in adipose [fat] and other tissues. Lucy Q.
Shen, MD, investigator, Harvard University Medical School, and colleagues
conducted a chart-review of 124 patients who had been treated with
rosiglitazone and 158 controls whose diabetes was treated with other
agents. Study subjects had diabetes for a mean of 15 years and were
matched for baseline ocular characteristics. After a mean of 2.8 years of
follow-up, progression to severe non-proliferative diabetic retinopathy
occurred in 7.1% of rosiglitazone subjects compared with 20.8% of controls.
Dr. Shen said she could not explain why rosiglitazone should have such an
ocular effect, but it was not related to better glycemic control.
2. Long-Term Linezolid Associated with Rare Instances of Optic Neuropathy,
by Clementine Wallace, Reuters Health, Mar 10, 2006: The oxazolidinone
antimicrobial agent [an antibiotic] linezolid may cause reversible optic
neuropathy::as well as irreversible peripheral neuropathy::if taken for
more than five months, researchers report in the latest issue of Neurology.
Linezolid is important in treating chronic and recurrent bacterial
infections, so one objective is to educate the audience to recognize these
possible side effects. Treatment of gram-positive bacterial infections
with linezolid is recommended for a maximum of 28 days. However, it is not
uncommon to have patients on the medication for longer periods. Dr. Janet
Rucker, from the Rush University Medical Center in Chicago, told Reuters
Health. The mechanism of linezolid neurotoxicity is still unknown, but
comparison with antimicrobials such as chloramphenicol, which is also known
to damage optical and peripheral nerves, suggests that oxazolidinone may
inhibit mitochondrial protein synthesis.
3. [another drug possibly toxic to the eye] Ontak Linked to Reports of
Visual Loss, by Yael Waknine, Medscape 2006: FDA and Ligand Pharmaceuticals
Inc. have warned healthcare professionals of the risk for visual loss
associated with use of denileukin diftitox (Ontak) injection, according to
an alert sent yesterday from MedWatch, the FDA's safety information and
adverse event reporting program. The FDA has received reports of loss of
visual acuity, usually with loss of color vision with or without retinal
pigment mottling, after administration of denileukin diftitox. Although
some patients recovered, most reported persistent visual impairment.
Denileukin diftitox is indicated for the treatment of patients with
persistent or recurrent cutaneous T-cell lymphoma.
3. Survey of Ophthalmology Volume 51, Issue 3, pages 179-212 (May 2006),
"A Sick Eye in a Sick Body? Systemic Findings in Patients with Primary Open-
angle Glaucoma":
Despite intense research, the pathogenesis of primary open-angle glaucoma
(POAG) is still not completely understood. There is ample evidence for a
pathophysiological role of elevated intraocular pressure; however, several
systemic factors may influence onset and progression of the disease.
Systemic peculiarities found in POAG include alterations of the
cardiovascular system, autonomic nervous system, and immune system, as well
as endocrinological, psychological, and sleep disturbances. An association
between POAG and other neurodegenerative diseases, such as Alzheimer and
Parkinson disease, has also been described. Furthermore, the diagnosis of
glaucoma can affect the patient's quality of life. By highlighting the
systemic alterations found in POAG, this review attempts to bring glaucoma
into a broader medical context.
4. PubMed Eye, 2006 Mar 17: Intravitreal triamcinolone will cause
posterior subcapsular cataract in most eyes with diabetic maculopathy
within two years. Islam MS et al.; Queen's Medical Centre, University
Hospital Nottingham, UK. A total of 22 (81%) of 27 eyes developed cataract
during the follow-up period. Conclusion::given appropriate long term
follow-up, the majority of patients, even after a single intravitreal
triamcinolone injection [into the jelly-like portion of the eye], will go
on to develop cataract.
5. Ophthalmology Volume 113, Issue 4, April 2006: Tolerability and
Efficacy of Multiple Escalating Doses of Ranibizumab (Lucentis) for
Neovascular [wet] Age Related Macular Degeneration. Randomized clinical
study::Philip J. Rosenfeld, MD, PhD, Bascom Palmer Eye Institute,
Conclusions. Multiple intravitreal injections of ranibizumab at escalating
doses ranging from 0.3 to 2.0 mg were well tolerated and biologically
active in eyes with neovascular AMD through 20 weeks. Mild transient
ocular inflammation was the most common postinjection adverse event.
WHITE CANE STORY
by Susan Krieger
[This story is taken from Things No Longer There: A Memoir of Losing Sight
and Finding Vision by Susan Krieger (Madison: University of Wisconsin
Press, 2005), pages 126-127. For accessible versions of this book for the
blind, please visit: susankrieger.stanford.edu. Used with permission.]
Because my vision has been gradually growing worse, last summer I took a
series of lessons in the use of a blind person's white cane. ... A man came
out to my house. He walked with me along the streets nearby, showing me
how to use the cane, feel the sidewalk, go up and down steps, know if a car
was parked across a driveway and then how to get around it. As I walked
with him, I learned to listen.
"I'm feeling things," I said to him at first. "You're hearing them," he
told me. And I learned to hear the buildings as we passed them, to hear
the sound of a tree deflecting the wind, to hear the changing pattern of
the air when I stepped away from a building. I learned that a sudden gust
of wind, and some sun, told me I was at a street corner. I learned that
when my feet pointed up, I was headed toward the crest of an asphalt
street; when they pointed down, I was headed toward the sidewalk on the
other side.
I stood on a corner and my teacher told me to listen to the cars
approaching in order to know whether they had stopped or kept going. I
should gauge where they were by noting the position of the loudest noise in
relation to the center of my forehead. He told me to listen at traffic
lights for the car movement patterns, to wait until a cycle came around to
my turn, then go quickly when the traffic went.
As I walked along the streets, I often walked crooked. He told me to go
straight by paying attention to the buildings at my side. The space in
front of a building would be quiet, it would feel rather dead. I could
walk with the quiet by my side. In other places, however, there were many
noises. I walked and closed my eyes; and the world without vision in which
I was being mobile felt very noisy and busy, full of different ways the air
felt when I approached a tree or a street sign, or was about to bump into a
garbage can. I heard a house on my left, then a driveway; I felt a
staircase coming toward me. I heard construction noises in the distance.
I felt the sun and the wind of a corner. I walked up a hill and sensed
that up ahead there was something interesting going on. People were
talking. Machinery was at work. I felt that the world of walking up a
street and not seeing the buildings but hearing them was richer, less flat,
more busy, more alive than the visual world. Then I went back to what I
could see, because it was easier and I was used to it.
I learned many techniques for the proper use of a white cane from my
teacher, but the real lessons for me lay in feeling I could be mobile
without a car, without a license, without seeing. I was not less good as a
person for not having sight. I'd be okay.
BULLETIN BOARD
compiled by Keith Black and Mike Keithley
Major sections of Bulletin Board are headed by a row of eight stars. Sub-
sections have their own headers, and the second entry of a sub-section
begins with two stars.
********
From Matilda Ziegler Magazine for the Blind, March 2006:
Bookstore (braille books available for purchase).
Associated Services for the Blind and Visually Impaired in Philadelphia
announces the opening of its online braille bookstore, which has more than
100 books available, ranging from classics to popular novels. With weekly
updates, the store plans to have more than 300 books in its catalogue.
Most books cost from $15 to $35 and are shipped by Free Matter. All the
books are professionally transcribed and proofread. For those buying a
braille book as a gift, the store will include your message (up to 20
words) in print and braille. Visit www.asb.org/bookstore.html.
** Writers' Workshop. Sanford Rosenthal, Chairman of the recently formed
Disabilities Task Force of the National Writers Union, seeks participants
for a telephone conference workshop. Once a week, at an agreed time, they
will encounter each other by phone to discuss writing, getting published
and more. Send e-mail to sanfordrosenthal@nwuatlarge.org or write in
braille or tape to 3360 N.E. 33rd St. #4, Fort Lauderdale, FL 33308; phone
954-563-9449.
From Matilda Ziegler Magazine for the Blind, April 2006:
Anthology. Ann Morris Bliss and Cheri Langdell seek additional
contributions to an anthology that will portray blindness and visually
impaired people in an uplifting, inspirational way. Based on a firm
commitment from a publisher, the editors wish to broaden the book to
include nonfiction as well as poetry. They seek both new and previously
published works. For thought-provoking questions to use as guidelines, and
for instructions on submitting pieces, send e-mail to
annmorris@optonline.net or write to Ann Morris Bliss, P.O. Box 6579,
Bradenton, FL 34281; or send e-mail to Cheri Langdell at cheril@family.net,
or write 1141 S. Oakland Ave., Pasadena, CA 91106. Finally, anyone
interested in being interviewed for the book is invited to contact the
editors. They hope the anthology will help those who are losing their
vision and will educate sighted people about blind people's capabilities
and feelings.
From Matilda Ziegler Magazine for the Blind, May 2006:
Book on diabetes. To help people who become blind from diabetes, Pocket
Reference Journals, a publisher of pocket-sized health reference books, is
publishing a braille edition of its book, "My Pocket Doctor::for
Diabetics." Written by an endocrinologist, the book contains essential
facts for a person with diabetes and also provides space for record-
keeping. It explains the ABC's of diabetes: blood glucose testing,
medications, and suggests a sample diet plan and guidelines for eating out.
There is a list of resources by phone and Web site. Especially useful are
an emergency ID card and logs to record one's weight and blood pressure.
In contracted braille, it costs $47 plus $10 for shipping and handling. It
will soon be available on CD. Call 714-965-4570 or visit
www.pocketreferencejournals.com.
Pocket Reference Journals publishes 18 pocket books in all, written by
experts and combining basic health information with record-keeping. This
is their first venture in braille. The company would appreciate feedback
and suggestions from readers about future braillings.
********
From Dialogue Magazine, January-February 2006:
Money Talks is a new, accessible bank account management software package
developed by the American Printing House for the Blind. It provides
flexible bank account management, printing and braille embossing of the
check register, and writing checks in a variety of sizes and styles. The
CD version, $49, comes with high quality Enhanced Voicing speech. The
electronic download version, $39, does not have the Enhanced Voicing; but
the program can be used with a screen reader. A demo version can be
downloaded from the Web site.
Also now available from APH is the Miniguide US, a tiny, hand-held
electronic travel device that can enhance the effectiveness of a blind
person's primary travel method. The Miniguide US uses ultrasound to detect
objects and gives tactual or auditory feedback by vibrating or chirping
more rapidly as you approach an object. It's ideal for use by deaf-blind
persons. When used with a cane or dog guide, the Miniguide US can help a
blind person avoid obstacles and overhangs; locate landmarks; locate items
such as mailboxes or trash cans; and find open paths through crowds at
ranges from 20 inches to 26 feet, depending on the size of the object. The
Miniguide US should be used along with a dog guide or cane because it does
not detect drop-offs and does not provide sufficient information to ensure
safety. The Miniguide US with print or braille users guide costs $545.
For more information, contact the American Printing House for the Blind,
1839 Frankfort Avenue, P.O. Box 6085, Louisville, KY 40206; phone 800-223-
1839; e-mail: info@aph.org; Web site: www.aph.org.
From Dialogue Magazine, March-April 2006:
Freedom Scientific has announced the new OPAL ultra-portable video
magnifier. This new product offers powerful features for on-the-go low
vision users and is an excellent companion to the Topaz line of desktop
video magnifiers. The OPAL contains a small camera and displays images on
a brightly-lit four-inch screen. The magnification level can be varied
from 3x to 6.4x with a sliding fingertip control while the unit rests
firmly on a document. The ultra-portable design allows the OPAL to be
easily slipped into a coat pocket or purse so it is ready for use at any
time. Use the OPAL to verify a prescription at the pharmacy, read the menu
at a restaurant, fill out a check at the bank, read item labels at the
grocery store and much more. The OPAL costs $795 and became available in
March. For more information, contact Freedom Scientific at 800-444-4443 or
www.freedomscientific.com.
********
CCB Cruise:
California, you have asked for it and we have listened. The California
Council of the Blind has scheduled a cruise for May 11 to 14, 2007. Come
join your friends and help support CCB at the same time.
For each person booked on the cruise, Damar Travel and Carnival Cruise
Lines will make a donation of $45 to CCB. We will depart on Friday from
Long Beach and travel to the wonderful city of Ensenada, Mexico where we
will have a full day to enjoy Mexico. Prices start at $525 for an inside
cabin and $565 for an ocean view. Prices include three day cruise, port
charges, government fees and gratuities. An initial deposit of $50 is
required and final payment is due on or before February 1, 2007. For your
convenience, you can make monthly payments. Everyone is welcome. For
reservations and additional information, please call Dave Kronk with Damar
Travel and Cruise at 800-999-6101 x422.
Access to Kaiser Permanente:
If you have complaints about access barriers at Kaiser Permanente
facilities in California, contact barbosagrp@aol.com.
Your ADA Experience is Needed on Online Comment Form:
The national network of ADA & IT Technical Assistance Centers, also known
as DBTACs, seeks your comments on your experiences with the Americans with
Disabilities Act. Your feedback on your experiences in employment,
building access and access to public services will help the Centers
identify training gaps and issues needing increased technical assistance.
Visit the on-line form at www.adata.org and tell us what has worked for
you, what barriers you still encounter and how the ADA has made a
difference in your life. We are interested in your successes and concerns.
Chicago Lighthouse Sets Up Assistive Technology Computer Help Desk:
In an effort to accommodate people with visual impairments in need of
technical support, The Chicago Lighthouse has established a telephone
assistive technology support line. The toll free number for the new
service is 888-825-0080. Blind or visually impaired people can call the
support line regardless of what product they are using or whether it is
hardware or software. Teachers, trainers and those working with adaptive
technology are also encouraged to call.
Reach a Human:
Do you get tired of the automated voices on the phone prompting you to say
this or say that, dial this or dial that number, or set of numbers, only to
be further bantered by the oh so cheerful automated voice? Well, the "get
human" site helps you navigate through all that and get right to a human.
This site apparently has a listing of several national companies and
organizations that have numbers with many voice-automated extensions, and
it gives the phone and prompts to get straight through to a live human
being. Go to www.gethuman.com/us. Cool!
New Apple Email List:
A new mailing list has been set up for users of Apple and Mac computers.
It's a general list so any questions about Apples and Macs are welcome for
discussion, and the list is designed for both novice and advanced users.
To subscribe, send a blank email message to mac-talk-subscribe@tft-bbs.com.
Optacon Preservation Project:
Optacon users are working together to preserve this valuable reading
device. We wish all Optacon users to know that Optacons can still be
repaired. We also invite all current and former Optacon users to fill out
a brief survey describing their experience, both negative and positive. If
we can collect enough data, there is a possibility of re-developing the
Optacon with modern circuitry to read many types of displays other devices
cannot currently read. We are searching for non-working or unused Optacons
to repair and put back into circulation. If you need repair information,
would like a copy of the current Optacon user survey or wish to join the
Optacon user list, please email braille@panix.com. Thank you.
CCB OFFICERS, BOARD OF DIRECTORS AND PUBLICATION COMMITTEE ROSTERS
by Bernice Kandarian
[Editor's note: We are indebted to Bernice Kandarian who updates and
corrects the list of CCB officers and board members, including the number
of the term each is presently serving, the year elected to that term and
the year next up for election. Terms actually begin on January 1 following
election. We shall publish the list this way at least in issues just
preceding and following elections and routinely if members wish. The
presence of an asterisk means that the individual served a partial term
before the first full term.]
President, Jeff Thom (04-06, 2nd term)
7414 Mooncrest Way
Sacramento, CA 95831-4046
916-995-3967 C
jsthom@comcast.net
1st Vice President, Mitch Pomerantz (04-06, 2nd term)
1115 Cordova Street, #402
Pasadena, CA 91106-3036
626-844-4388 H
213-847-9124 W
mitch.pomerantz@lacity.org
2nd Vice President, Eugene Lozano, Jr. (05-07, 1st term)
4537 Sycamore Avenue
Sacramento, CA 95841-4509
916-485-8307 H
916-278-6988 W
lozanoe@csus.edu
Secretary, Rhonda King (05-07, 1st term)
4541 Cyclamen Way
Sacramento, CA 95841-3506
916-349-9960 H
imjoking@earthlink.net
Treasurer, Peter Pardini (*04-06, 3rd term)
267 Cardinal Road
Mill Valley, CA 94941-3618
415-381-9211 H
866-570-5335
peterpar@pacbell.net
Immediate Past President, Catherine Skivers (2002-??)
836 Resota Street
Hayward, CA 94545-2120
510-357-1986 H
ccotb@ccbnet.org
BOARD OF DIRECTORS
Jerry Arakawa (05-07, 2nd term)
11180 Orville St.
Culver City, CA 90230-5380
310-398-7004 H
jarakawa@comcast.net
Ardis Bazyn (*05-06, partial term)
500 South 3rd Street, # H
Burbank, CA 91502-1476
818-238-9321 H
abazyn@bazyncommunications.com
Al Biegler (05-07, 4th term)
819 Colusa Street
Chico, CA 95928-4116
530-893-8840 H
aljobiegler@juno.com
Gabe Griffith (04-06, 1st term)
9101 Newhall Dr #48
Sacramento, CA 95826-5345
916-505-8780 C
gabe@griffith.net
Jane Kardas (*05-07, 4th term)
810 Maple Avenue
Ukiah, CA 95482-3723
707-468-5510 H/Fax
janecalvert35@yahoo.com
Ann Kysor (05-07, 1st term)
225 - 15th Street
West Sacramento, CA 95691-3723
916-372-9869 H
ann@kysor.net
Louis Preston (04-06, 1st term)
17129 Antonio Avenue
Cerritos, CA 90703-1006
562-404-7935 H/Fax
lpreston@csulb.edu
Barbara Rhodes (04-06, 3rd term)
6396 Tamalpais Avenue
San Jose, CA 95120-1838
408-268-2110 H
brhodes@pacbell.net
Richard Rueda (05-07, 3rd term)
1501 Decoto Road, #169
Union City, CA 94587-3548
510-324-0418 H
510-622-3083 W
richardrueda@sbcglobal.net
PUBLICATIONS COMMITTEE
Bernice Kandarian, Chair
2211 Latham Street #120
Mountain View, CA 94040-1652
650-969-3155 H
bernice@tsoft.net
Mike Keithley, Editor
191 East El Camino Real #150
Mountain View, CA 94040-2714
650-694-7771 H
mkeithley@pobox.com
Cecile Betts
552 Avenida Carmel Unit A
Laguna Woods, CA 92637-3467
949-586-2957 H
cecebetts@fea.net
Julie Cantrell
3079 West Cheryllyn Lane
Anaheim, CA 92804-3168
714-952-1453 H
714-290-0367 C
jcandassoc@adelphia.net
Winifred Downing
1587 38th Avenue
San Francisco, CA 94122-3011
415-564-5798 H
wmdowning@mindspring.com
Evelyn Drewry
mixed.up@cox.net
Brian Hall
5722 Abraham Avenue
Westminster, CA 92683-2858
714-894-3497 H
brianlhall@earthlink.net
Daveed Mandell
1921 Francisco Street #7-A
Berkeley, CA 94709-2105
510-665-9260 H
daveedm@sbcglobal.net
Louis Preston
17129 Antonio Avenue
Cerritos, CA 90703-1006
562-404-7935 H/Fax
lpreston@csulb.edu
Bonnie Rennie
2540 Forest Lake
Santa Ana, CA 92705-6921
714-771-2397 H
eal727200@aol.com
Richard Rueda, Moderator, CCB-L and BC Email Edition
1501 Decoto Road, #169
Union City, CA 94587-3548
510-324-0418 H
richardrueda@sbcglobal.net
Catherine Schmitt Whitaker
604 Camaritas Drive
Diamond Bar, CA 91765-1911
909-861-2931 H
clschmitt@csupomona.edu
Dan Kysor, Webmaster
225 - 15th Street
West Sacramento, CA 95691-3723
916-372-9869 H
dan@kysor.net
Please send all address changes to the Executive Office in Hayward.
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